No more neuro!

Gosh, It seems like I haven't posted in awhile. I need to keep up with this more often.
Anywho, We did the 3 day monitoring. It wasnt as bad as I thought but it was still difficult. The hardest parts were of course putting the things on Devyn's head as well as putting the IV in. He didn't know what was going on. He didnt understand why we were there. He just looked at me and screamed while they did these things to him. Made my heart hurt. Being in the hospital made me really sad. Just realizing that a lot of families have to live in these hospitals. Their loved ones dont always come home. Breaks my heart. We were able to leave. It isnt always the case for others. Being there for only 3 days felt like weeks! But, we were able to leave. I cant begin to imagine how others feel.

Devyn got restless towards the end..he did get some visitors though! He loved that. So thankful that a few people came to visit so he didnt feel like we were doing something horrible to him. All this stuff has changed him. Since he has gotten the eeg, MRI, hospital stay..he is somehow different. He gets scared easily, he is afraid of a lot of new places and things, his anxiety is through the roof..he is changed. But, the GOOD news is that there is no reason to believe he has any kind of seizure disorder. They didnt find any major activity on the eeg in the hospital except I guess possible signs of activity. But, the doctor assured us that it isnt enough for them to diagnose or put him on any medication. So, he was discharged from seeing neuro and we only need to be seen on a as needed basis. SO HAPPY FOR THAT! Happy that this testing is over with. I just hope my little dude will be able to overcome this fear of his. They gave him a bear for being discharged..and autumn too! :)


My daughter also had her big appointment with a developmental pediatrician. It was not a good appointment. I left feeling like the worlds worst mother. This doctor made it seem like I dont do anything with my child and that it is my fault she is delayed. She kept saying she sees red flags in her for autism. I denied such things. I know what autism is and yes she is a doctor but I KNOW in my heart that my daughter does not have autism. This lady was beyond ridiculous. She said quite a few things that was very unprofessional and offended me. I called and made a complaint and asked to switch doctors for her follow up. We will see what happens in 4 months...But, I was reassured when I spoke to Autumn's speech therapist. She completely agrees with me. She isn't a dev. ped. But she knows my daughter. She doesnt see ANY red flags.

I have been feeling some crazy emotions these past few months...
Life has been pretty complicated and bad as of late as well. I dont want to get into detail about everything..But, I just hope things get better for us soon. I am really scared and worried...I just hope everything turns out okay. I have also attempted to quit smoking. I havent smoked in 10 days. I hope I can do this but I am very weak these days..I just think I might give in. Life is too stressful. Until my next post..